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ADA

adenosine deaminase

The ADA gene provides instructions for producing the adenosine deaminase enzyme, which is crucial for immune system function and preventing the build-up of harmful molecules. The ADA gene encodes the adenosine deaminase enzyme, found in all cells but particularly abundant in immune cells called lymphocytes.

Chromosome 20q13.12 Autosomal recessive HGNC:186 Tier C
ADA 20q13.12 p arm q arm 20

ADA is located on the long (q) arm of chromosome 20, at band 20q13.12. Arm ratio per GRCh38 - banding schematic.

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Overview

The ADA gene, or adenosine deaminase, is essential for normal cellular function, particularly within the immune system. It directs the production of an enzyme that helps to process a specific molecule, preventing its accumulation to harmful levels. Dysregulation of this gene is linked to severe health conditions, primarily affecting immune development and function.

What the gene does

The adenosine deaminase enzyme, encoded by the ADA gene, is responsible for converting deoxyadenosine into deoxyinosine. Deoxyadenosine is a molecule that accumulates when DNA is broken down and can be toxic to cells, especially lymphocytes. Lymphocytes are specialised immune cells found in lymphoid tissues, such as the thymus and lymph nodes, which are critical for defending the body against pathogens like viruses and bacteria. By neutralising deoxyadenosine, the ADA enzyme prevents its build-up, which could otherwise lead to early cell death and severely impair immune system development and function. Although present in all cells, the enzyme is found in the highest concentrations within lymphocytes, underscoring its importance for immune health.

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Chromosome location

The ADA gene is situated on chromosome 20 at position q13.12. This specific genomic location indicates its address within the long arm of chromosome 20, providing a precise reference point for genetic studies and clinical investigations.

Protein structure

The adenosine deaminase protein consists of 363 amino acids. A specific region spanning amino acids 126-143 has been identified as required for binding to DDP4, suggesting a role in protein-protein interactions or enzymatic regulation.

Domain map · 363 amino acids
Required for binding to DDP4 (126–143)Required for binding t126–1431~182363
Region - functional region
🧬 Explore 3D structure on AlphaFold
UniProt:P00813Length:363 aaStructure:AlphaFold

Key variants

Variants within the ADA gene encompass a range of changes that can affect the function or production of the adenosine deaminase enzyme. These genetic alterations can include single nucleotide changes, insertions, or deletions, potentially leading to a dysfunctional or absent protein. Such changes can disrupt the enzyme's ability to process deoxyadenosine, leading to its accumulation and subsequent cellular toxicity.

747
Total variants catalogued in ClinVar
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166 Pathogenic / Likely pathogenic 181 Uncertain significance 388 Benign / Likely benign 12 Conflicting or other

Sample of pathogenic variants

10 pathogenic / likely-pathogenic variants from ClinVar, ranked by review status (expert-panel-reviewed first). This is a sample; recurrent founder variants in a specific population may not appear here - see the full ClinVar listing via the link above.

Variant (HGVS) Protein change Classification Evidence Associated condition
c.396dup
Duplication
p.Val133fs Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.532del
Deletion
p.Val177_Val178insTer Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.603C>G
single nucleotide variant
p.Tyr201Ter Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.632G>A
single nucleotide variant
p.Arg211His Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.646G>A
single nucleotide variant
p.Gly216Arg Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.716G>A
single nucleotide variant
p.Gly239Asp Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.736C>T
single nucleotide variant
p.Gln246Ter Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.845G>A
single nucleotide variant
p.Arg282Gln Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.975+1G>A
single nucleotide variant
- Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency
c.976-1G>C
single nucleotide variant
- Pathogenic ★★★☆ Severe combined immunodeficiency, autosomal recessive, T cell-negative, B cell-negative, NK cell-negative, due to adenosine deaminase deficiency

Evidence stars indicate ClinVar review status. Individual variant interpretation should always be performed by a qualified clinical laboratory - many variants remain classified as Variants of Uncertain Significance (VUS) pending more research.

Associated conditions

Pathogenic variants in the ADA gene are primarily associated with SCID (ADA deficiency). This condition significantly impairs the immune system and typically presents with severe health problems early in life. Most ADA gene variants linked to SCID involve changes to single amino acids within the adenosine deaminase enzyme, altering its structure and function.

  • SCID (ADA deficiency)
    Immunology
    AR
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Inheritance pattern

Conditions caused by pathogenic ADA variants typically follow autosomal recessive inheritance.

Carrier parent 1 altered copy Carrier parent 1 altered copy Affected Carrier Carrier Unaffected Affected Carrier Unaffected Circles = females · Squares = males

When both parents are carriers, each child has a 25% chance of being affected, 50% of being a carrier, and 25% of being unaffected.

Carrier frequency by population How common is heterozygous ADA carrier status across ancestry groups?

UK clinical status

The ADA gene is recognised in the UK by NHS England's Genomic Medicine Service and is listed on several PanelApp panels. These include COVID-19 research, DDG2P, Infantile enterocolitis & monogenic inflammatory bowel disease, Likely inborn error of metabolism (R98), Primary immunodeficiency or monogenic inflammatory bowel disease (R15), Severe combined immunodeficiency with adenosine deaminase deficiency (R16), and Undiagnosed metabolic disorders, indicating its significance in diagnosing various conditions within the NHS.

Frequently asked questions

What is the main function of the ADA gene?

The ADA gene provides instructions for making the adenosine deaminase enzyme, which is crucial for breaking down deoxyadenosine, a potentially toxic molecule that accumulates during DNA breakdown. This process is especially important for the proper function and development of immune system cells.

How does a faulty ADA gene affect health?

When the ADA gene is faulty, it can lead to a deficiency of the adenosine deaminase enzyme. This results in the accumulation of toxic deoxyadenosine, primarily affecting immune cells and causing a severe inherited immune disorder known as SCID (ADA deficiency).

Is ADA deficiency inherited?

Yes, ADA deficiency is an inherited condition. It follows an autosomal recessive inheritance pattern, meaning an individual must inherit two copies of the altered ADA gene (one from each parent) to develop the condition.

References

  1. Blackburn MR, Thompson LF. Adenosine deaminase deficiency: unanticipated benefits from the study of a rare immunodeficiency. Journal of immunology (Baltimore, Md. : 1950). 2012. PMID: 22262755
  2. Hershfield MS. New insights into adenosine-receptor-mediated immunosuppression and the role of adenosine in causing the immunodeficiency associated with adenosine deaminase deficiency. European journal of immunology. 2005. PMID: 15580654
  3. Nyhan WL. Disorders of purine and pyrimidine metabolism. Molecular genetics and metabolism. 2005. PMID: 16176880
  4. Hershfield MS. Genotype is an important determinant of phenotype in adenosine deaminase deficiency. Current opinion in immunology. 2003. PMID: 14499267
Educational content. This page is not medical or genetic advice, is not individually reviewed by a clinician for each reader, and should not replace a consultation with a qualified healthcare professional or genetic counsellor. If you are considering genetic testing or acting on a test result, book a consultation.
Data sources Last updated 6 September 2026. Content compiled from HGNC · MedlinePlus Genetics · ClinGen · Genomics England PanelApp · NHS National Genomic Test Directory · ClinVar · UniProt · AlphaFold .